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Key Links
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800-252-9108
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Advocacy, Inc. is a nonprofit corporation
funded by the U.S. Congress. It's mission is to advocate
for, protect and advance the legal, human and service rights
of people with disabilities. It has offices througout the
state of Texas.
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The State of Texas Assistnce and Referral System (STARS)
is a on-line system that will guide you through a series
of questions that will help identify the human services benefits
they may be eligible to receive. STARS is bilingual.
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800-628-5115
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The Department's main purpose is to assist people with
disabilities to participate in their communities by achieving
employment of choice, living as independently as possible
and accessing high quality services.
The San Antonio office for DARS is at:
8610 Broadway
Suite #310
San Antonio, TX 787217
Phone: 1-800-410-7760
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General Links
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Below is a listing of web sites related to brain injury.
A brief description follows each title. They are listed
in alphabetical order.
GENERAL
INFORMATION ON BRAIN INJURY
www.biausa.org
The National Brain Injury Association,
Inc. web site. Contains the National
Directory of Rehabilitation Services,
state brain injury offices, information
on prevention and cost, upcoming conferences,
articles, ask the doctor, and pediatric
information.
www.braincenter.org
The Brain Injury Association of Kentucky
- reviews brain injury and resources.
www.brainindex.com
Information on brain injury, from concussion
to coma. Links to advocacy, coma, Brain
Injury Association, and others. Online
support groups and online chatrooms.
www.caregiver.org
Family Caregiver Alliance. Fact sheets,
online support, legislative alerts, newsletter.
www.cdc.gov/ncipc/tbi
Centers for Disease Control and Prevention.
Facts about concussion and brain injury,
and where to get help. Free booklet with
statistics, prevention, and mild brain
injury.
www.claudiaosborn.com
Book "Over My Head" by Claudia Osborn.
Experiences of an individual with a brain
injury.
www.comarecovery.org
The Coma Recovery Association (CRA) is
a non-profit organization, located in New
York. Contains documents, online library
of various topics.
www.dpi.state.wi.us/dpi/dlsea/een/tbi.html
Wisconsin Department of Public Instruction,
Traumatic Brain Injury information. Contains
TBI definition and eligibility, TBI Resource
kit, CESA contacts.
www.fasst.org
Friends and Survivors Standing Together. Clear
steps and information on how to set up
a support group in your community.
www.headinjury.com
Informational site of definitions, newsletter,
library, professional resources.
www.health.org
National Clearinghouse for Alcohol and
Drug info. Click on Alcohol and Drug facts,
then Disabilities, then "TBI and Drugs".
www.health-helper.com
Discusses book of "Coping with Mild Brain
Injury" by Diane Roberts Stoler and Barbara
Albers Hill. Has links and resources on
brain injury, contusion, concussion, stroke,
tumor, TBI and MS.
www.lapublishing.com
Lash and Associates Publishing/Training. On-line
catalog of tip cards, manuals and books
specially written for parents, educators,
and clinicians.
www.naric.com
National Rehabilitation for Information
Center. A collection of federally funded
research projects, books, articles. Information
and referral, database searches. Service
to anyone interested in disability and
rehabilitation.
www.neurolaw.com
Neuro Trauma Law. Information resource
for understanding the legal system's involvement
in brain and spinal cord injury. Role of
neurolawyer, understanding brain and spinal
cord injury, legal resources, support groups.
www.neuroskills.com
Traumatic Brain Injury Resource Guide.
30 sections, i.e. brain map, mild head
injury, bookstore, support groups, pharmacology,
research grants, conference calendar.
www.nemc.org/rehab/homepg.htm
New England Medical Center - Dept of Rehab
Medicine. Publications on brain injury,
children and prevention. Has Pediatric
Trauma Registry.
www.neure.com
Neurotrauma Registry is a tool to help
individuals who have sustained a traumatic
brain injury, spinal cord injury, or other
complex neurotrauma. Using the Neurotrauma
Registry, individuals have the ability
to locate professional care-givers and
associations, such as the Department of
Rehabilitative Services, in their geographic
areas.
www.nichcy.org
National Information Center for Children
and Youth with Disabilities (NICHY). A
comprehensive information and resource
site with publications related to issues
of children, disabilities, and education.
www.rehabnet.com
Northeast Rehabilitation Health Network.
Information on various topics of disability
and rehabilitation.
www.sasquatch.com/tbi
Information, links, support groups, articles,
searches on TBI and ABI.
www.subtlebraininjury.com
Sponsored by Brain Injury Law Group, headquartered
in Wisconsin. Reviews mild brain injury.
www.tbilaw.com
Sponsored by Brain Injury Law Group, headquartered
in Wisconsin. Information about brain injury,
coma, mild brain injury, personal injury,
social security, ADA, worker's compensation.
Several links to other sites on brain injury.
www.tbi.org
The Perspectives Network. Frequently asked
questions about brain injury in multiple
languages, chat site, message board, articles
from The Perspectives Network Magazine,
reference materials, resources, and survivor
tools. Survivors can scan their artwork
and poetry. Includes page of Frequently
Asked Questions about Brain Injury,
in English, Spanish, French, Italian, Dutch,
Danish, Norwegian, Chinese and Greek.
www.tbichat.org
Seven different chatrooms, message boards
for discussions and questions, member stories,
poems and writings, and homepages of individuals
with brain injury and caregivers. Contains
other links about brain injury.
www.tbilife.com
A website dedicated to survivors to
help them deal with the many frustrations,
Q&A from survivors from around the
world, poetry.
www.tbinet.org
Brain Injury Information Network. Resources
and links to TBI support groups, medical
and drug references, seizure info, articles,
education and IEP, alternative therapy,
legal info.
www.tbigrants.com
State demonstration grant program. Explanation
of statewide systems that ensure access
to comprehensive and coordinated TBI services.
Lists federal agencies' web & addresses.
www.tbiquide.com
Book titled "Traumatic Brain Injury - Survival
Guide", 1998 by Dr. Glenn Johnson, Clinical
Neuropsychologist. Reviews common indicators
of brain injury, anatomy and function of
brain, common problems and coping (memory,
headaches, getting organized, anger, and
depression).
www.vh.org/
Virtual Hospital from University of Iowa
Health Care. Go to "For Patients," then "Department," then
to "Neurology," then to "Brain
Injury." Or you can start at www.vh.org/Patients/IHB/Neuro/,
then click onto Brain Injury. This
link provides a booklet online named "Brain
Injury: A Guide for Family and Friends." Also
available in Spanish.
www.waiting.com
Site dedicated to people who have a loved
one in a coma. Information and emotional
support. Features coma stories, advice,
anatomy, ICU guide for families, frequently
asked questions, legal and financial issues,
advocacy in the hospital and nursing home.
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ORGANIZATIONS
RELATED TO BRAIN INJURY
www.abta.org
American Brain Tumor Association. Research,
information and resources.
www.acenet.edu
American Council on Education. Go
to ACE programs, then to HEATH Resource
Center. Information concerning post-secondary
education and individuals with disability.
www.dana.org
Information on the programs, activities
and publications of the Charles A. Dana
Foundation and the Dana Alliance. Grant
programs in health and education.
www.efa.org
Epilepsy Foundation. Contains research,
news, educational material, and publications.
www.familyvillage.wisc.edu
Waisman Center - Family Village Project.
Resource concerning disability and children.
Can connect with other parents with children
with similar challenges or needs.
www.fetaweb.com
Special Education Survival Guide; Has articles,
checklists, sample letters, charts & resources;
Has a "Yellow Pages" for kids
with disabilities; is the companion website
to www.wrightslaw.com.
www.halftheplanet.org
Named on the estimate that half the people
will have a disability at some time during
their lifetime, this site promotes information,
advocacy, and self-awareness based on experiences
of persons with many types of disabilities.
www.heath-resource-center.org
HEATH Resource Center. Information concerning
post-secondary education and individuals
with disability.
www.mcw.edu
The Medical College of Wisconsin. Education,
research, patient and community care.
www.ncpad.org
The National Center on Physical Activity
and Disability (NCPAD) encourages persons
with disabilities to participate in regular
physical activity as a means of promoting
healthy lifestyles and preventing development
of secondary conditions. Variety of resources
for persons with disabilities. Also has
research citation searchable database.
www.npnd.org
National Parent Network on Disabilities. All
types of legal, advocacy, and educational
information to empower parents as the service
coordinators of a child with special needs.
www.pacer.org
Parent Advocacy Coalition for Education
Rights. Provides national list of
Parent Training Information Centers. Information
on all aspects of special education and
advocacy written specifically for parents.
www.parentpals.com
This user-friendly site has an interesting
feature that helps link parents with professionals
and shares parents' tips with other parents
without the involvement of a listserve. Provides
information all parents need about special
education regardless of the child's diagnosis
and disability.
www.pedianet.com
Comprehensive pediatric health and information
resource for parents, children, and health
professionals. Can link to Exceptional
Parent Magazine.
www.stroke.org
National Stroke Association.
www.wiccbd.org
Wisconsin Council for Children with Behavior
Disorders, division of national Council
for Children with Behavior Disorders (www.ccbd.net)
and parents organization Council for Exceptional
Children (CEC).
www.wistech.org
Assistive technology information network.
Information on products, services, selecting,
funding, installing, and using assistive
technology.
www.wrightslaw.com
Special Education Law & Advocacy
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NATIONAL
AGENCIES AND OFFICES
Disclaimer: All external hyperlinks are provided
for your information and for the benefit of
individuals with brain injury, families, friends,
and professionals who work with brain injury.
AHIA does not testify to, sponsor, or endorse
the accuracy of the information provided on
the web sites listed....The contents
are the sole responsibility of the authors
and do not necessarily represent the official
views of AHIA.
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